Why a daily journal of news, thoughts, tips and ideas? It's because as I do research every day to update this site, I discover all kinds of information and helpful ideas that other people might find useful.
Whether you are new to the Crohn's or have had it for years like I have, you will probably find something here you needed to know. It's like a clearing house.
Perhaps you have something you've discovered about Crohn's and would like to add it to this page. Perhaps even just some thoughts on the subject. It's simple. Just fill in the form at the bottom of this page. Give us a day or two and we'll add your contribution to this website.
You never know when an thought you have (or discovered) will help someone with their situation. I can tell you first hand that it's a great feeling when you've added something worthwhile to someone else's life.
It can be anything having to do with Crohn's Disease or Stress (boy, does that cover a lot of ground). Perhaps you've discovered a technique to deal with pain, or a book has given you some great ideas. It can be anything that relates to Crohn's and Stress.
Entries will be added many times a month, so be sure to come back often. You just might find an idea that makes a difference in your life. (Note: Some links over time will not be current and no longer exists.)
You will also find new items that have been added to this website. It is evolving. Everyday there is something new or different. A thought of mine or a thought of someone else. You never know. So this page would be a good page to find out what has been added since you were here before.
So before you read the entries, don't forget you can add your own thoughts or discoveries by filling out the form at the end of the page.
Enough said. Let's get started.
12/6/2005
The December Crohns Newsletter is out and it contains information about Crohns Disease & Fish Oil, as well as new visitor comments and thoughts, and an article about the importance of nutrition. Let me know what you think! Not a subscriber? sign up here! |
8/23/2005
A visitor named Marissa submitted the following question: I have been told I have Crohn's Arthritis ... does anyone else suffer from this? I can't find much information on it. Her email is:marissa_janney@agilent.com |
8/2/2005
The sixth issue of the Crohn's Disease and Stress Ezine is out. Interested in more information on Crohn's Disease and Stress? You can now sign up for the newsletter. It comes out about once a month. Here's what the sixth issue has: An interview with Tiffany (betagirl from www.healingwell.com ). She recently had a post at the forum that inspired me. I had to interview her. Here is a woman with Crohn's Disease who competes in cycling competitions. For long rides. Amazing. Want to read more about what the newsletter is about? Maybe sign up for it? (It's free.) If you answered yes, click here. |
7/27/2005
A new drug for Crohn's Disease has successfully passed two stage III trials. ATLANTA, July 26 /PRNewswire/ -- UCB today announced positive results for the two pivotal Phase III trials (PRECiSE 1 and 2) of certolizumab pegol (CDP870) in the induction and maintenance of clinical response in moderate to severe active Crohn's disease. The Precise trials assessed the safety and efficacy of CIMZIA(TM) compared to placebo over a 26 week period, in a total of 1330 patients with active Crohn's disease. Data from PRECISE 1 and 2 will be presented in more detail at the major forthcoming gastroenterology medical congresses. Also, I will have a new newsletter out shortly. The last 8 weeks have been so hectic, I'm running late. |
6/1/2005
The fifth issue of the Crohn's Disease and Stress Ezine is out. Interested in more information on Crohn's Disease and Stress? You can now sign up for the newsletter. It comes out once a month. Here's what the fifth issue has: 1. Is there something you can do to help your digestive tract deal with Crohn‘s Disease? Yes. And learning about the “Gut-Brain Connection” points you in the direction to do exactly that. 2. Here’s how a simple 200 year old technique can help you reduce the stress in your life. 3. The importance of humor in our lives. Want to read more about what the newsletter is about? Maybe sign up for it? (It's free.) If you answered yes, click here. |
5/16/2005
A visitor named Rick submitted the following thoughts. You'll read how he was impressed with the 17 year old who submitted to this page. I'm impressed with Rick. Here's what he had to say: I was touched by the reader who wrote being 17. I was diagnosed at 21 but have been ill since 19 & I want you to know that I graduated college, I now own a Brokerage House in Canada with 50 employees 9 years later! Talk about stressful. It's all how you look at life and view yourself in it. Surround yourself with people you feel have the attitude you look at yourself with. You can live a full life, you'll find what works for you. Go for it... |
4/18/2005
The fourth issue of the Crohn's Disease and Stress Ezine is out. Interested in more information on Crohn's Disease and Stress? You can now sign up for the newsletter. It comes out once a month. Here's what the fourth issue has: 1. A free service to help you reduce your stress. 2. Can the drug Humira help you with Crohn's Disease? Includes an interview with someone using it. 3. The importance of humor in our lives. Still more. Want to read more about what the newsletter is about? Maybe sign up for it? (It's free.) If you answered yes, click here. |
3/27/2005
A CCFA event in California to support its mission to cure and prevent Crohn's disease and ulcerative colitis through research, and to improve the quality of life of children and adults affected by these diseases through education and support. The Heel to Heal Walk is a unique and exciting way to support CCFA while participating in a healthy activity. It is also an opportunity for you to form a team and get others involved in making a difference in the lives of those affected by these diseases. Anyone can form a team! Just organize a group of co-workers, friends, family members, clients, vendors-anyone! Set fundraising goals for yourself and your team and make sure everyone has a registration form. Once you register, you will receive a complete "Team Captain Kit" with everything your team will need to get started. Team participation is FUN and EASY! www.ccfa.org Susan H. Browning Development Director CCFA, Northern California Chapter 111 New Montgomery Street, Suite 208 San Francisco, CA 94105 415.356.2234 sbrowning@ccfa.org |
3/27/2005
I was touched by Julie who wrote being 17. I was diagnosed at 20 but have been terribly ill since 15 + I want you to know that I graduated university, am working in Media as a Producer, I have a wonderful fiancée of 5 years, and yes I get tired. In fact right now I can hardly stand up but I am at work and have had 4 year remission. You can live a full life, you find what works for you. In my case GREEN TEA- fresh leaves always settles me and I don’t need anything other than a B12 shot at the moment- but BOY do I need that!!! But there are days when nothing works too and I just need to have an early night. You hang in there sweetheart, I'm rooting for you , you can do anything. And when you feel down please remember that out there , there are others who know what you are going through and had the same fears and the same pain. Joanne |
3/27/2005
Website with free Doctor's ratings. I haven't used it myself, but it sounds interesting. The name of the website is MDnationwide.org. You can grade your own doctor, find a doctor and much more.
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3/19/2005
The third issue of the Crohn's Disease and Stress Ezine is out. Interested in more information on Crohn's Disease and Stress? You can now sign up for the newsletter. It comes out once a month. Here's what the third issue has: 1) A Powerful Medical Tool is Making a Difference in the Lives of Patients With Crohn's Disease. 2) Interview with Kimi (rebelsgirl) - owner of Crohn’s Sanity Forum. 3. The importance of humor in our lives. You'll love this. Want to read more about what the newsletter is about? Maybe sign up for it? (It's free.) If you answered yes, click here.
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2/19/2005
The second issue of the Crohn's Disease and Stress Ezine is out. Interested in more information on Crohn's Disease and Stress? You can now sign up for the newsletter. It comes out once a month. Here's what the second issue has: 1. Famous people with Crohn’s Disease and one lesson we can learn from them. 2. Interview - Randal (Randy) Meyers - Randynoguts of HealingWell.com forum fame. 3. The importance of humor in our lives. Want to read more about what the newsletter is about? Maybe sign up for it? (It's free.) If you answered yes, click here.
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2/6/2005
Here's a link to an article about how a drug called Humira has been shown to be effective for people with Crohn's Disease - especially if Remicade stops working Humira Relieves Crohn's Disease Symptoms . "We are very encouraged by the findings of this study and look forward to larger prospective studies," says researcher Konstantinos A. Papadakis, MD, with the Inflammatory Bowel Disease Center at Cedars-Sinai Medical Center in Los Angeles, in a news release. His paper appears in the current issue of American Journal of Gastroenterology. |
1/19/2005
First issue of the Crohn's Disease and Stress Ezine is out. Interested in more information on Crohn's Disease and Stress? You can now sign up for the newsletter. It comes out once a month. Here's what the first issue has: 1) A strategy to deal with skeptical relatives and friends 2) Why it is so important for a person with Crohn's Disease to look at his or her priorities. Included is an article from the Mayo Clinic. And more... Want to read more about what the newsletter is about? Maybe sign up for it? (It's free.) If you answered yes,
click here. |
09/1/2004
Here's a link to an article about a warning given to doctors concerning patients receiving the drug Remicade to treat rheumatoid arthritis and Crohn's disease . Blood, nervous system ailments tied to Remicade use, FDA says Associated Press WASHINGTON (AP) -The Food and Drug Administration and manufacturer Centocor are warning doctors that patients receiving the drug Remicade to treat rheumatoid arthritis and Crohn's disease have suffered sometimes fatal blood and central nervous system disorders. Centocor, a subsidiary of health care product manufacturer Johnson & Johnson, said the FDA has been told of 580 adverse reaction reports among 509,000 worldwide patients, said Craig Buchholz, a Centocor spokesman. Forty-four reports were most worrisome because they involved significant blood disorders.
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08/27/2004
Here's some thoughts from a visitor named Gary. I was diagnosed with Crohn's disease in April of 2003, and began taking asacol. I definitely feel that stress plays apart in Crohn's. I can tell that my Crohn's is worse when I get stressed out. Then I start to worry about how I feel and that adds to the problem. It is a vicious cycle.
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08/18/2004
Here's a link to an article about a survey of 1000 people with Crohn's Disease. A lot of good information. Survey Results Reveal Underestimated Impact of Crohn's Disease on Quality of Life for People and Their Families HORSHAM, Pa., Aug. 18 /PRNewswire/ -- According to results released today from the newest survey of people with Crohn's disease, "Voices of Crohn's," 60 percent of people with Crohn's, between the ages of 18 and 34, have been hospitalized within the last two years and more than half have required surgery within the past five years. Nevertheless, more than half of people surveyed still find that their employers, families and friends underestimate the effect of the disease on their daily lives. |
08/1/2004
There was the following paragraph dealing with Crohn's Disease in an article about woman's health . Crohn's Disease Diagnosis - A new discovery will make Crohn's disease diagnosis much easier. Dr. Kathy Siminovitch, a research scientist at Mount Sinai Hospital in Toronto, has isolated a gene that predisposes people to Crohn's disease - but not ulcerative colitis - two illnesses which can be difficult to differentiate. With earlier treatment, there's a greater chance of preventing serious complications. The above article apeared on the website Chatelaine.com Chatelaine.com is the No. 1 Canadian Web site for women 18+. Chatelaine and Chatelaine.com are flagship members of Rogers Media Publishing. Rogers Communications is Canada's largest fully integrated communications organization with interests in the cable systems, wireless, media and telecommunication sectors. |
07/04/2004
Here's some thoughts from a visitor named Brittany. Eliminating stress is very important. Stress is one of the#1 causes of flare ups with Crohn's disease. Stress is like an illness, and effects the body like an illness. Always be aware of signs of stress BEFORE they come. I have been diagnosed with Crohn's for 2.5 years now, and got it when I was 21 years old. Yes it has been the hardest and most painful thing I have dealt with but I will never give up. A note from me to all of you sufferers from Crohn's always get more than one opinion from a doctor, because as we know doctors are not always right. All Dr's have different ideas and you will never know what idea will work until you find the best Dr for you. Good Luck! Thanks Brittany. |
07/3/2004
New - We are in the process of adding a Crohn's Disease Dictiionary. Some of you may have noticed the new link on the navigation bar about a Crohn's Disease Dictionary. This will be a great feature in that many of the words on the website will now be linked to the dictionary. So if you come across a word you're unsure of, you can click on the word, go to the dictionary and read what it is. And it's not just a dictionary. When you click on the word and go to it's definition, there will also be 1 or more paragraphs with relevent information. We aim to please by overdelivering the information you need. It will take some time to get a lot of words in the dictionary. I hope you will bear with us. It will be worth it.
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06/23/2004
Here's a link to an article about genetic studies related to Crohn's Disease. Galileo Genomics Discovers More Than 10 New Gene Candidate Regions in Crohn's Disease in Whole Genome Study Powered by Perlegen Technology MONTREAL, QUEBEC, AND MOUNTAIN VIEW, CALIFORNIA, June 22 /PRNewswire/ - Galileo Genomics and Perlegen Sciences today announced the completion of a linkage disequilibrium-based genome-wide scan (LD-GWS) of Crohn's disease in the Quebec Founder Population. The study identified two previously reported disease genes, NOD2/CARD15 and OCTN, and more than 10 new regions strongly associated with Crohn's disease, each containing one to four genes. The LD-GWS was performed on 1,500 individuals using more than 248,000 SNP markers distributed throughout the human genome, resulting in 372 million genetic analyses. This is one of the largest disease gene discovery surveys ever performed in a single common disease. |
06/22/2004
A Review of the Book "The Motivated Mind" I have written a review of a book that I believe is very important to anyone with Crohn's Disease. The title of the book is "The Motivated Mind." In my opinion, there is no more important book for the mental health of someone with a chronic disease. I say this because while fighting the disease, we still need to get a lot done in life and we still need to accomplish our most cherished dreams. By knowing how to tap into your motivated mind, you will get more done in less time. And in the process, you will feel better about yourself. You owe it to yourself to at least read the review. Here's a link to it: |
06/10/2004
Here's a link to an article about a survey done with people who have Crohn's Disease and pain in the UK. The Painful Truth About Colitis and Crohn's Disease ST. ALBANS, England, 10 June /PRNewswire/ -- A new survey of people with the serious bowel conditions Colitis and Crohn's Disease, collectively known as Inflammatory Bowel Disease (IBD) reveals a largely hidden burden of severe pain. Organised by the National Association for Colitis & Crohn's Disease (NACC) to coincide with Colitis & Crohn's Week and supported by Fame Academy's Carrie Grant, who herself has Crohn's Disease, the survey provides a dramatic insight into the lives of the estimated 180,000 people living with IBD in the UK. |
06/1/2004
Here's a link to an article about a drug being developed in Canada for people with Crohn's Disease. Drug offers new option for Crohn's disease Canadian-led study shows natalizumab is safe and effective. A Canadian doctor says an experimental drug called natalizumab will help in the fight against Crohn's disease, a chronic condition in which the body's own immune system mistakenly attacks the intestines. |
05/17/2004
Here's a link to an article about a study on a drug being developed by Abbott Labs for people with Crohn's Disease. NEW ORLEANS, May 17 /PRNewswire-FirstCall/ -- Results from a Phase II study released Monday suggest that Abbott Laboratories' (NYSE: ABT - News) ABT-874, a fully human anti-interleukin-12 monoclonal antibody, showed significant differences in response and remission rates in patients with active Crohn's disease (highest response rate 75 percent at week 7; highest remission rate 50 percent at week 19) compared to placebo in one arm of the study. |
05/13/2004
Here's a link to an article about the company who developed Capsule Endoscopy's which is used to help diagnose Crohn's Disease. ATLANTA, May 13 /PRNewswire-FirstCall/ -- Given Imaging (Nasdaq: GIVN) today announced that the company has joined the Crohn's and Colitis Foundation of America's (CCFA) President's Corporate Circle. Given Imaging and the CCFA will work together to broaden understanding and awareness of Capsule Endoscopy's role in diagnosing and monitoring small bowel Crohn's disease so that patients suffering from the disease can receive appropriate therapeutic treatments earlier in the progression of the disease. |
04/29/2004
Jaguars backup quarterback diagnosed with Crohn's disease  EDDIE PELLS  Associated Press
JACKSONVILLE, Fla. - Doctors have diagnosed Jaguars quarterback David Garrard with Crohn's disease, an intestinal ailment that sent him to the hospital last week and left him sidelined Friday for the start of the team's minicamp. Crohn's disease causes blockage in the intestines. The cause of the illness is unknown and there is no known cure. Crohn's disease causes chronic diarrhea, abdominal pain, fever and weight loss. It afflicts more than 500,000 people in the United States. Garrard, a third-year veteran who played college ball at East Carolina University, said he started feeling sick in January. After a battery of tests, he was diagnosed with Crohn's on March 23. He has since lost about 10 pounds. Last week, medicine he had been taking to combat the illness lost effectiveness and he had be hospitalized. He opted against surgery to alleviate the blockage and instead went on a relatively new medicine, Remicade, that removes a type of protein from the bloodstream that can cause the inflammation. Garrard said he was feeling fine Friday, but is sitting out because he's not in playing shape. "It feels like I'm walking in mud right now," Garrard said. "I'm healthy, not having any problems, eating right. I'm just trying to get my legs back." While not considered life-threatening, Crohn's can stay in a person's system for years, and patients can relapse at any time. Doctors have assured Garrard that playing football won't put him at any risk because of the disease. "It's going to do whatever it's going to do on its own," Garrard said. "Football isn't going to bring it back or keep it away." The Jaguars signed free-agent quarterback Doug Johnson earlier this week. In Friday morning's workout, Johnson took several snaps that would have gone to Garrard. Coach Jack Del Rio said the signing had nothing to do with Garrard's health. "I thought it was a great opportunity to bring in a quarterback and strengthen ourselves at that position," Del Rio said. Garrard conceded he was scared before he knew what was wrong. Now, however, he's looking at the bright side: He's eating better, has lost weight and is happy because the illness isn't as serious as it could have been. "It's bigger than football," he said. "It's just how I'm going to be from now on." |
04/21/2004
Hope for the future: This article appeared in the paper. It seems that researchers have isolated a gene that predisposes people to Crohn's Disease. This brings us one step closer to finding a cure for this disease. Here's the article: United Press International Tuesday, April 13, 2004 TORONTO, Apr 12, 2004 (United Press International via COMTEX) -- Canadian researchers have isolated a gene that predisposes people to Crohn's disease, an inflammatory bowel condition with few satisfactory treatments. Isolating the gene is a critical step toward improved diagnosis and better therapies, said Catherine Siminovitch, lead author and a professor at the University of Toronto department of medicine. The researchers used DNA samples from family groups, first to locate the chromosome containing the gene, and then identify the gene. The gene in question produces a protein that regulates how substances enter and exit the cell -- a protein that malfunctions in most Crohn's disease patients. The ability to test for the protein will help physicians distinguish between Crohn's disease and ulcerative colitis, another common inflammatory disease of the bowel. The finding also should shed light on the basic causes of chronic inflammation, which could help research in other conditions such as rheumatoid arthritis, Siminovitch said. |
4/09/2004
A personal note: I had a 17 year old with Crohn's Disease enter her story on this website. It's good to know that this website is helping people. That's why I created it. Here's the story: "Hello my name is Julie and I have been seeing a doctor who thinks I have Chrones disease. I am only 17 years old and I notice that when I get upset or stressed I do hurt more. I have so many questions about the disease and how it will effect my life. I have like all the symptoms you listed above. I am not sure if I know how to handle this, but through help and I guess by getting my questions answered. Your information was very helpful and I thank you for your website. This has made me think on how to change my activities and my diet. Thank you and I like your quotes also." Thank you Julie. Ed |
04/7/2004
Here's some thoughts from a visitor named Adam. I've found that during a flare up a short nap will settle your stomach. Also, vitamins like Centrum work well to help. Also, keeping a routine of when you eat and what works.
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4/06/2004
Stress and Decision Making:
I was just reading an article that talked about decision making when a person is under stress. The ability to make good decisions when under stress drops for most people. Yes there are some people who respond at a higher level when under stress, but I don't think that's the case for most people.
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3/30/2004
I have added a new feature to this site. Get yourself a free journal. You can now download a free journal to help you cope with Crohn's Disease. It is designed to help with determining you personal dietary laws. With it, you should be better able to tell what foods are causing you the most problems. It's sometimes hard to tell what you can eat and what you can't. this journal was designed to help you notice patterns between what you eat and the pain you experience. As I say on the web page, if you don't see a pattern, the pain you are feeling is likely not caused by something you ate. The journal also helps you remember what you want to talk to your doctor or GI about. You can't trust you're memory. Here's a place to write down what you want to talk about so you won't forget. There's also a lot of quotes. I think it helps to take the wise ideas of the past and present and try to apply some of them to your situation. I would love to hear criticism, both good and bad, from people who download the journal. Let me know how I can improve it. To get more information on the free journal, click here. Note: There is 1 more days on the Free B12 offer. This is for the patented sublingual pill that bypasses the digestive system and goes directly into the blood stream because you let it disolve under you tongue. If you'd like to get the free month's supply, just fill out the form on the page after you click here. Sorry, the free B12 is over till next time. |
3/27/2004
An experience of mine with Prednisone. This happened many years ago. I was tapering off Prednisone. I had followed the doctor's instruction to a "T". But evidently I was coming off a little too fast. I was to go into work and I was running a 99 degree temperature. Since it was so low, I figured I would go into work anyway. I did not know that Prednisone masks infection. At work, I started shivering and knew my fever was going up. It got so bad, they had to call an ambulance to take me to emergency. It turns out that I was actually running nearly a 104 degree temperature. They had to ice me down. So if you are taking a steroid, and begin running a fever, watch it closely. You could be running a higher fever than you realize. Especially if you are tapering off the drug. Note: There are 0 more days on the Free B12 offer. This is for the patented sublingual pill that bypasses the digestive system and goes directly into the blood stream because you let it disolve under you tongue. If you'd like to get the free month's supply, just fill out the form on the page after you click here. Sorry, the free B12 is over till next time. |
3/25/2004
Getting a good night's sleep is so important. I use to have trouble sleeping at night on occasions. I would feel so tired the next day that I finally mentioned it to my doctor and he prescribed Ambien for me. I don't take it on a regular basis, but when I need it, it sure helps. And I don't feel groggy the next morning when I wake up. Not everyone with Crohn's Disease needs something to help them sleep. But if you've had thoughts from time to time about doing it, I wouldn't hesitate. On a different subject, the company I buy the sublingual B12 from has continued the free months supply offer for another week. If you'd like to get the free month's supply, just fill out the form on the page after you click here. Sorry, the free B12 is over till next time. |
3/15/2004
Free month's supply of sublingual B12. I have set it up with the company I buy the sublinqual B12 from, to give a free month's supply of the product to people who visit my website. This is for a limited time. I have had great results from the product. Specifically - a lot more energy. That's one of the major qualities B12 provides. Some people call it the "feel good" vitamin. For people with Crohn's disease, the fact that this product works sublinqually, you just put it under your tongue and let it desolve, is a major benefit. By doing this you bypass the digestive system where the Crohn's Disease has caused it's damage. Will it work for everyone? Probably not. That's one of the most difficult qualities of Crohn's Disease. What one person can eat with no problems, causes another person a lot of problems when they eat it. Or a medication that works great for one person with Crohn's, has little or no effect on another person. That is why it was important for me to make sure it costs not one cent for someone visiting my website to try the product and see what it does for them. If you'd like to get the free month's supply, just fill out the form on the page after you click here. Sorry, the free B12 is over till next time.
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3/15/2004
People with Crohn's Disease and the people who love them. I've gotten some emails lately from people who have spouses and boyfriends who have Crohn's Disease. My first thought as I read these emails is how tough some people without the disease have it. They don't have Crohn's, but their loved ones do. Relationships are tough enough for everyone much less someone who has a chronic disease. It does show how strong a force love can be. I have so much respect for these people - both the people who have the disease and the people who love them. It's certainly a difficult situation to deal with. |
3/11/2004
Here's a thought about a positive I got from having Crohn's. I was just reading an entry in a message board I participate in and thought about one of the few positives I've gotten from having this disease. It's the fact that I've had to develop a stronger character than I would have probably developed. It hasn't been easy having Crohn's Disease, but I have learned how to cope with it. Until a person has a chronic illness, they have no idea how strong they can be. I've had to learn self discipline, how to think ahead to what might happen and what I will do about it, how to tollerate pain and at times embarrassment, how to have a good perspective in spite of a negative illness, and more. I might have developed the same qualities without the illness, but who knows? I also have more empathy for someone who is going through a tough time. So while it hasn't been easy having Crohn's Disease, there have been some positives. |
3/10/2004
Thoughts about diagnosis... or the lack of it. Today I was reading in a forum where someone was talking about the test they had gone through to see what their physical problems were. They went on to say and how their doctors said the results were suggestive of Crohn's Disease, but not definite yet. That took me back to the early 1980's when I discovered I had Crohn's Disease. It was discovered because I had an obstruction that was so bad it put me in the hospital. Until then, doctors told me I had a nervous stomach. If you ask anyone who knows me, they will tell you that I'm not a nervous kind of guy. I thought I was going crazy. It was a mental relief to find out what was wrong with me. I didn't like finding out I had a chronic disease with no cure, but at least I knew it wasn't just in my head. That became painfully obvious when the technicians who had taken my x-rays, told me to have a seat because they needed to call my doctor. After reading that thread today, I thought how far the medical profession has come since I was diagnosed. There are a lot of medications available today that were not available years ago. That's a plus. But it still amazes me that people still are being misdiagnosed or are not given definite findings about what their problem is. Hopefully, that will change soon. |
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