My daughter is 23 years old, and had upper abdominal pains every morning with nausea and vomiting, sometimes she would have to go to the emergency room when it gets so bad, at the time she wasn't diagnosed since 2014, she had an endoscopy in 2016, and her result was mild gastritis, and nothing else. she just was diagnosed with crohns disease this year "2018" from a colonoscopy procedure. she sometimes have a normal bowel movement.
When eats, she can't eat too much, because she gets bloated easily, or feels full very quickly, and tends to feel nausea's.
Crohns without diarrhea by: Anonymous
I was diagnosed two years ago with crohns. I never have diarrhea and move my bowels daily. My four mris over the last two years shoe a fistula that has been unchanged with, Humira, Remicade and Entyvio including numerous other drugs from antibiotics to immunosuppressant. Greatest symptoms are lower right quadrant pain and severe joint pain. Gluten and dairy free.
thanks Daisy by: Anonymous
Thanks Daisy for the quick and detailed response...It was only after your post that I started coconut water and I am leading a normal life now ..
I contacted the Admin of Crohns-disease-and-stress.com to request them to let other subscribers know about your post here..
Sadly, I still read a lot of posts here and other forums where people are STILL NOT leading a normal life. I want them to try coconut water and coconut oil etc
regards
Rohit
Rohit by: Daisy
I just realized that I failed to answer the second part of your question: how long I remained with the cocout...
I continue to drink it. :-) It tastes good and continues to keep me symptom free. As I mentioned in a previous post, coconut has many antiviral, antibacterial and antifungal properties, so drinking it is not only keeping my digestive system running smoothly, but I'm happy to report that I've not had so much as a common cold since I've stumbled upon coconut, which I like to think of as "nature's pharmacy"... what better doctor than mother nature herself and what better medicine than the one the earth, herself, provides?
re: Rohit by: Daisy
Hello again my friend! In response to your question:
3-4 servings of coconut water have been safe, in my personal experience. Naturally, everyone's body is a little bit different and people should listen to their bodies' cues, however I'd venture to say that coconut water three times a day should have no adverse effects. In fact, I have found it's a great way to ensure one stays well hydrated as coconut water has natural electrolytes.
Crohn's disease without diarrhea by: Rohit
Hi Daisy
Hope you are good, I am back on coconut water and I wanted to know if you have done any research on whats the safe level of intake of coconut water..I consumer 3-4 fresh coconut water daily is that safe?
For how long did you try coconut water?
thanks
Rohit
Crohn's disease without diarrhea by: Rohit
Hi Daisy
Hope you are good, I am back on coconut water and I wanted to know if you have done any research on whats the safe level of intake of coconut water..I consumer 3-4 fresh coconut water daily is that safe?
For how long did you try coconut water?
thanks
Rohit
crohns 24 years ago by: Anonymous
I had a severe bout 24 years ago and was told if it returns it is crohns --if it does not, it was ulcerative colitis.I had just had a baby 18 months earlier and it was so close to labor pains its not even funny. I lost about 10# in a week.
I have always thought the absolute definition of crohns was "bloody diarrhea"
surprises me to learn that --and I wonder if I did if fact had crohns not colitis. I do think greasy foods played a big part on the severity. wish i had known about the coconut water/milk--I hear it is very good for you regardless.
also Minneapolis
coconut oil by: Rohit
Hi Daisy
Hope you are well too. I have healed myself completely no pain no crohns symptoms.
After trying coconut water for a few weeks (with positive results) i started doing more research on coconut and read many good testimonials on coconut oil benefits. I switched to coconut oil and the results were almost immediate.
god bless you for sharing your experience.
regards
Rohit
re: Rohit/coconut oil by: Daisy
Rohit,
It pleases me to no end that you are fairing much better. :) I too, stumbled on the coconut oil some months ago (sorry I've not been online of late and therefore had not given the updates). I couldn't agree with you more... coconut, in all it's varieties, be it oil, the meat of the coconut, milk, or water is just ... WONDERFUL!!!!
The coconut oil has worked marvelously for me as well. (in fact, it cleared up a few other pesky health issues I had as well). Not only am I feeling healthier, I'm even looking younger!!!! My hair, nails,and skin are all significantly more youthful (an added bonus I hadn't been counting on!)
I would suggest to anyone stumbling upon this forum to give it a try! It has tremendous health benefits- antioxidant, antifungal, antiviral, antibacterial... and... yes... as we've witnessed first hand- the effects to gastrointestinal health are simply miraculous!!!!!! For the skeptics out there, I recommend researching it for yourselves- but don't stop there! TRY IT!!!!!! What have you to lose??? Best yet- no side effects (except for great ones, like increased vitality and a more youthful appearance)
I celebrate your victory with you, my friend and ally in this fight against a disease that might have otherwise killed us! :)
Keep up the good work... take care of yourself and by all means- let's crack open a coconut. :)
~Smiles~
Daisy
Coconut oil for Crohn's by: Rohit
Coconut Oil has cured my crohns within a month (lasted for 2.5 years and fixed within 2.5 days after finding coconut oil cure) and the results were immediate. I can eat anything now...I take 3 teaspoon 4 times a day with meals and breakfast.You are advised to start with 1 tsp 4 times to start and then increase the amount gradually. 2nd month u can take 2 tsp 4 times and 3rd month 3-4 tsp 4 times Fixes many health problems too. Its a tonic.
more info http://www.earthclinic.com/Remedies/coconut_oil_facts.html
Just had a laparoscopy by: Claudia
I saw a GI specialist after having wt loss,left-sided abd pain, some Nausea + vomiting who did a laparoscopy to do a swollen mesenteric lymph node biopsy, About 5 weeks prior, I had another GI Dr. do EG&D with a colonscopy and he told me all results were negative for any GI noted diseases. GI specialist told me her observation of my abd laparoscopy was my large colon looked irregular in size/diameter and she feels this may indicate Crohn's. I do not have diarrhea/ sometimes stools vary in size and float at times. ?Does this sound similar to anyone else/ I am 56.
Crohn's disease without diarrhea by: Rohit
Hi Daisy
Hope you are well. I too am recovering fast. Gained some weight already :) after several months. Very happy about that and the credit goes to you and your post here.
I use tender coconut water and not canned water as here in India, canned coconut water is not available. I use it three times a day. I wanted to increase the amount but wanted to check with you first. I read somewhere that more can lead to dehydration as it is a mild laxative. Please let me know what your experience says.
I have read on many forums that even coconut oil help so I have incorporated that too in my diet. I suggest you to try it as well, no negative effect so far and others have have good experience.
Additionally I have started eating tender coconut flesh / meat. Any experience you have had with it.
Please share your exp on this topic.
I wanted to get out of this mess fast so trying as many options as possible. coconut water seem to be doing the magic. And I cannot thank you enough for your help and support so far. I am sure others will also benefit from your experience and out discussion here.
regards
Rohit
Crohn's with constipation? by: Anonymous
I'm not sure yet if I have crohn's or not; having colonoscopy done soon. I do have colitis(with more and more flare-ups) and IBS. I am quite often constipated and I have to be very careful of what I eat. Steak kills me, grease gives me terrible pain and bloating and if I eat more than a handful of peanuts or cashews, I'm in complete agony for a day or two. Alot of times I'll have bloating and abdominal pain even if I haven't eaten anything i shouldn't have. But I rarely have diarhea unless I've eaten greasy food, which I sometimes have to so I can go to the bathroom. I never hear anything about constipation and crohn's so I never thought that I could possibly have it. If anyone knows about this topic, some info would be great.
Thank you
Crohn's disease without diarrhea by: Rohit
thanks a lot Daisy again.
regs
re: Rohit by: Daisy
Rohit, it was my pleasure to reply to your previous posted question. My Crohn's was pretty severe... I was in "heading to the operating room" shape prior to starting on the coconut water. It really didn't take long for me to see significant life altering results... I'd say that by month 2-3 I felt brand new... and when I went for my testing, the results confirmed it. I did make a few dietary changes/tweeks. As you know, there is no real "diet" for Crohn's sufferers- as what is harmful to one, won't be a trigger food for another. I made a food diary- began jotting down all that I ate- and equally important- when i ate it.
I would then rate the effect of the food on my digestion. This was a lengthy process, as i had to keep the foods limited to one to two types of food per day- then gradually increasing in varieties to enable me to isolate which type of food would be a potential trouble maker.This provided a fool-proof way to accurately guage what foods were a no- no. Greasy, fried foods tended to be an automatic DO NOT EAT.
Some vegetables turned out to be big offenders for me. For instance, cabbage and broccoli would almost immediately cause inflammation. I would swell up like a balloon- the pain of those episodes being something that still sends chills down my spine.
I also learned that I shouldn't eat a cornucopia of foods in one sitting. Limiting myself to only a few different things per meal makes it easier for me to digest. I remember going to a buffet once while on vacation, and being overtaken by the whole "vacation mentality", decided I'd try one of EVERYTHING they had. That night, I nearly died due to an obstructed bowel. It was an experience that I still have bad dreams about.
Another tweek that I made was: instead of eating 3 large meals in a day, I eat many little meals during the day. I try to shoot for a small bit of something every three hours. (This is great for the metabolism too, I might add)
Avoid carbonated drinks. I found that, as much as I hated to do it, I had to wave goodbye to my soda cans. I don't miss it much- ice cold coconut water is far more refreshing and I know I'm getting healthier with every sip!
Anyway, I really hope that some of these additional tips work for you as well. I like to help when I can. *smiles* If the path I pave for myself can help make someone else's journey easier- why keep it secret? It's my pleasure to share it!
Crohn's disease without diarrhea by: Rohit
I cannot thank you enough for reponding.
Thanks a lot daisy for taking the time to respond to my comment. I just had coconut water this morning again and my stomach pain suddenly reduced. I am quite sure it will help.
Do u take any special precautions wrt the food you eat? and how severe were your symptoms when when u started. Additionally, how long it took to get complete relief from Chrons after u started coconut water?
Please let me know
thanks a lot
Regards
coconut water by: Daisy
This is in reply to Rohit's questions:
I drink coconut water pretty much every time I feel thirsty. Am happy to report that I am still symptom free.
According to my gastroenterologist, my capsule endoscopy found no remaining evidence of Crohn's at all! I am happy to read that you have given this a shot and are already seeing improvement! Keep at it... before long, you will be reporting the same amazing results that I have had... I have no doubt!!!
The best part about it, is that coconut water is something that's all natural and has none of the horrible side effects that the medications currently available to Crohn's sufferers have. Additionally, coconut has natural anti-viral, antibacterial and anti-fungal properties. This is especially good news to people suffering from Crohn's. Coconuts have previously gotten a bad rap due to the high fat content,however, modern research has shown that not all saturated fats are alike and that the fatty acids in coconut oil, the medium chain triglycerides, do not raise serum cholesterol or contribute to heart disease, but are in fact very healthy... and even better, won't make a person gain weight. (I know, that for women especially, weight gain might be a concern). When I was first diagnosed with this disease, I felt as though I was just handed a death sentence. Nonetheless, I had no intention of accepting that fate. I began doing countless hours of research on different things that might help... and this, was something that was so effective that I just had to pass this information along to anyone else suffering from the same plight I was in. Please keep me posted on what I know will be your continued improvement in overall health. I raise a tall glass of coconut water and *cheers* drink to your good health!
~smiles~
Daisy
coconut water by: Daisy
This is in reply to Rohit's questions:
I drink coconut water pretty much every time I feel thirsty. Am happy to report that I am still symptom free.
According to my gastroenterologist, my capsule endoscopy found no remaining evidence of Crohn's at all! I am happy to read that you have given this a shot and are already seeing improvement! Keep at it... before long, you will be reporting the same amazing results that I have had... I have no doubt!!!
The best part about it, is that coconut water is something that's all natural and has none of the horrible side effects that the medications currently available to Crohn's sufferers have. Additionally, coconut has natural anti-viral, antibacterial and anti-fungal properties. This is especially good news to people suffering from Crohn's. Coconuts have previously gotten a bad rap due to the high fat content,however, modern research has shown that not all saturated fats are alike and that the fatty acids in coconut oil, the medium chain triglycerides, do not raise serum cholesterol or contribute to heart disease, but are in fact very healthy... and even better, won't make a person gain weight. (I know, that for women especially, weight gain might be a concern). When I was first diagnosed with this disease, I felt as though I was just handed a death sentence. Nonetheless, I had no intention of accepting that fate. I began doing countless hours of research on different things that might help... and this, was something that was so effective that I just had to pass this information along to anyone else suffering from the same plight I was in. Please keep me posted on what I know will be your continued improvement in overall health. I raise a tall glass of coconut water and *cheers* drink to your good health!
~smiles~
Daisy
coconut works! by: Rohit
Hi Daisy
how much coconut water can be had. I have started this exp and my pains have reduced. Have u cured yourself completely or are there any symtomps left, please let me know
thanks
Greasy foods and diarrhea with Crohn's by: Anonymous
DH was diagnosed with Crohn's almost two years ago after having bloody diarrhea. Since then has been mostly asymptomatic, except for the frequency of diarrhea which isn't really all that frequent, but not something that he has really EVER had in the past.
For those of you that DO have diarrhea, how many can link it to greasy foods? We asked his GI dr about food restrictions, but he did not advise any.
coconut works! by: Daisy
Just wanted to update everyone on my situation. As you might have read, I had a capsule endoscopy scheduled to check on how things were going inside of me. In preparation for this event, I began drinking 6-8 cans of unsweetened coconut water per day. (I figured, it couldn't hurt)
Well... not only did it NOT hurt... the results were miraculous. My last colonoscopy showed my Crohn's was active. I'd developed precancerous conditions in my intestines and esophagus. I was scared. I began researching holistic remedies.. anything that might help. That was when I stumbled upon the coconut water. Anyway, when I visited my gastroenterologist for my capsule endoscopy results, my doctor was left with a gaping jaw. He was scratching his head as he said, "I simply can't explain it... your results are perfectly normal... I can't find a single pocket of Crohn's anywhere!" As you might imagine, I left there feeling on top of the world. All I can say is YAYYYYYYY!!!!
I encourage you all to try this... seriously, what could it hurt. It worked like a charm for me!
regarding side pain by: Lori
That is how mine started. It could also be pain from your ovaries. I was having that problem at the same time. Don't worry. The scope will show a lot and they will take biopsies.
Possible Crohn's by: Anonymous
I am experiencing lower right side pain. The only other symptom I have sometimes is nausea. Doc is doing a colonoscopy and said something about Crohn's. How likely is it that I have it with only those 2 symptoms?
Nexium by: Lori
I am no doctor but since my last post I stopped taking my Nexium and the bloating/gas pain has completely gone away. I also never forget to take my Probiotic. I think at one time my body needed the Nexium but I was shocked at how much better I felt when I stopped taking it. Just wanted everyone to know it is worth a try if you take it.
No Diarrhea Either... by: Serenity
I have just been diagnosed with Crohns Disease. I am 63 yrs old and have suffered with pain, bloating and occasional constipation most of my life. Now I am having severe vomiting, pain, bloating and bowel obstructions. Tests reveal
inflammation in my small intestine. They used to call my condition mucous colitis, but my doctor said they had many names for what is now called
Crohns. I was worried about having diarrhea, because of my job, so it is a comfort to know I might not develop the diarrhea problem. Best
wishes to all.
reply for Lori by: Daisy
Yes Lori... coconut milk will work just as well. :)
Does Coconut Milk work the same by: Lori
Just curious Daisy if you have tried coconut milk? I saw that at the grocery store too. Please let me know
try coconut water! by: Daisy
Hello again everyone! I'd like to give you all a head's up on some exciting news. Coconut water really does help! I have been experiencing so much relief from the horrible painful inflammation associated with my Crohns disease by drinking coconut water! It's amazing how many gastrointestinal maladies can be relieved or even remedied by something so readily accessible and affordable for us all. (this should be especially useful for those of you that suffer Crohns with constipation, as coconuts are a natural, non-addictive way to produce a bowel movement)
As you all know, I've been doing hours of research on how to best get this horrible disease under control for myself... this has been the most promising thing I've found thus far- the results have been amazing!!!!!
I have a capsule endoscopy scheduled for the 8th of March and am almost certain that my test results will show what my body is already feeling- incredible improvement... Let's face it, for those of us suffering from this disease, the future seems so bleak- (when one considers colostomy and other such horrific surgeries as the disease progresses.... in fact, most Crohns patients can expect surgery within ten years of being diagnosed) I don't know about you, but that just isn't anything that I'm looking forward to. With that in mind, I'm willing to try just about anything to avoid it... Research on all the health benefits of coconut and coconut water... truly... it's definately worth a shot! Please let me know how it works out for you... it's been doing wonders for me so far.
Extreme Tiredness Crohns by: Loz
I am taking Pentasa for mild crohns. I don't have the runs but I do have extreme tiredness. Docs carried out I don't know how many bloods but can't find problem. Someone said Vitamin D could be problem, lack of
definitely by: Anonymous
Yep. I have Crohn's and so does my brother. Neither of us has ever had diarrhea. In fact, as others have wrote, I tend to be constipated. According to one source, 85% of patients with Crohn's have diarrhea, leaving 15% of us who don't (http://www.aafp.org/afp/2003/0815/p707.html).
This is really interesting to me because I know I've read that some research suggests that there are actually several subtypes of "Crohn's," which may some day be identified as separate diseases.
4 yrs of dealing with crohn's by: R Bollaert
I've been trying to help my daughter who was diagnose with Crohn’s when she was nine years old. I have over 200 hours of research trying to find out how to combat this disease. What I have found out is that doctors only want to administer drugs and do surgery and almost all of them do not want to think out of the box. I have found a way to combat this disease, but maybe 2 of 10 people are willing to try it because it takes strong will power. Basically it is a modified vegan diet and no I'm not a vegetarian but this works for people with Crohn's. My daughter can not follow this diet strictly but does the best that she can and we have fair to good results. If she had the will power to do this diet 100 percent, I believe she would never have another flare up again. She does not eat red meat or pork. A person with Crohn’s has a genetic weakness in their body and can not handle toxins that are found in all processed foods, drinks and all animal products. I know this sucks but that’s just the way it is. There are a few vegetables that aren't good for people with Crohn’s either. You can get the proteins, good fats and vitamin D that are important for your body with this diet. There is a Hygienic doctor by the name of David Klein who has more information then you can handle on this diet treatment. He has helped over 1000 people beat this disease. His web site is www.colitis-crohns.com. He has a book called Self Healing Colitis & Crohn's. This book is a very good start for beating this disease. If you want to communicate with me, my e-mail is ricboaert@chaska.net. May God Bless You and Merry CHRISTmas. Rick Bollaert
Living with a Crohns patient by: Anonymous
My husband was diagnosed with Crohns last year. I finally got him to the right GI dr. and after many tests, clonoscopies and now Remicade treatments he is slightly better. He is in his 40's and had been diagnosed with ulcers since his late teens. Needless to say he had Crohn's probably from the time he was born.
I am trying to deal with this horrible disease with him but he is not a good patient. He eats what he wants which is ok with his Dr. who told him he can figure out what foods are not good for him and those that dont 'hurt' him.
The worst thing he is doing to himself is smoking those awful cigarettes! He has been smoking since he was 15 and I understand how hard it is to stop. I am hoping that if he stops the smoking he may feel better. Has anyone felt much better after quitting smoking?
I think the Remicade helps. He had an extreme near-death side effect from Immuran and went straight from that to the ivRemicade treatments every 8 weeks. Has anyone been able to 'come off' the Remicade? He does need surgery to remove 14" of intestine. He won't get it because he is a workaholic and won't take the time for the operation and we have no medical insurance at all.
He gets the Remicade from an assistance program but that is it.
How much better will he feel after this major operation? The dr. said he would be in the hospital for at least a week and 8-10 weeks to recuperate.
Crohn's by: Daisy
Yes... it is entirely possible to have Crohn's disease and not have chronic or even occasional diarrhea. I am one such case. I tend to have more occasions of constipation than I do diarrhea. Still, the endoscopy and colonoscopy showed, without question, that Crohn's is the culprit of my intestinal woes. (including the ulcers, swelling, intense pain and even nausea). I too was in disbelief and hoped that I had been misdiagnosed somehow. No such luck. Still, I'm learning that there are all countless sources of information readily available to sufferers of this condition and am becoming more and more informed with each passing day.
Yes by: Anonymous
My son (age 6) was diagnosed 6 months ago, he usually is pretty regular with a daily normal bm. Tends to be on the constipated side when he does have issues. No pain either. But his coloscopy and endoscopy path reports were definitely positive for Crohn's. The disease is pretty extensive and because it is in the small intestine, he doesn't absorb nutrients well, but no diarrhea, hardly ever even loose.
It's possible, but... by: Anonymous
It's possible, but keep in mind that Crohn's is often misdiagnosed. You may have some other abdominal ailment (there is a long list of possibilities). Only a skilled gastroenterologist who performs a colonoscopy and a biopsy has a chance of verifying this illness.
The vast majority of correctly-diagnosed Crohn's patients suffer from diarrhea.
Diarrhea not always associated with Crohn's by: Shanda
Most definitely. I was diagnosed with Crohn's at age 25 and never had problems with diarrhea. I always had constipation problems. I had a bowel resection at 26 and rarely have had constipation since (I am now 32). I did have a flare up in Feb 2007 and have been having some issues the last few weeks with diarrhea immediately following all meals. So, back to the gastroenterologist I go.
crohn's without diarrhea by: Anonymous
I have Crohn's disease and rarely have diarrhea. My symptoms are pain, nausea and vomiting. I hope to begin Remicade soon, as oral medications are no longer working for me.
Crohn's without diarrea is possible by: Anonymous
ABSOLUTELY!!! I'm a prime example. Recently had a resection for the Crohn's yet I've always had constipation and not diarrea.
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