crohn's disease?

I have been treated for crohn's for 6 years, The Dr. with new insurance seems to think I was misdiagnosed
I have all signs and symptoms. Is there any sure way to know?

Comments for crohn's disease?

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Crohn's disease? NEW
by: Annette Young

Hi there,

Thank you for your comment. I hear so often that people have been misdiagnosed and it is a frustrating process, not just because of the wasted time involved but also that the medication may have been completely wrong. I experienced this with my own mother who suffered terribly and who experienced unsympathetic doctors but we got there in the end.

The best way to go forward with this is to go back to your doctor and to ask for new tests. There are varying tests that can be done but do not be afraid to push for them.

I know many people who feel that they can't make a nuisance of themselves but at the end of the day, you have a right to seek help. There are some fantastic doctors out there of course, but there are also those that know very little about Crohn's disease or any other bowel disease. It is understandable that mis-diagnosis can be made sometimes, because the symptoms are very similar but you do need to know.

If you are seeing a new doctor I would make it is easy as possible for that doctor to provide me with a correct diagnosis,so this will mean keeping a food Journal and writing down every single thing that you eat or drink and also have a sidebar where you can make notes about how you feel that day and any external stress for example.

The more information you can give your doctor the easier it will be to finally get to the root of the problem. Anxiety and stress can trigger off responsive attacks so try not to let the frustration get to you.

I wish you the best of luck.

Annette
crohns
by: Anonymous

hi
Try not to stress,crohns loves stress,i dont know if you have tried fishoil,i take it every day its great for inflamation keeps my arthritis [ somtimes effects people with crohns]at bay not to mention heaps of other benefits for you mind and body.drink heaps of water to so you dont get dehydrated.best of luck.

jodi
CROGN'S COMMENT
by: SHELLEY

THANKS FOR THE INFORMATION.THE GI DOCTOR HAS ORDERED A BLOOD TEST SO WE'LL SEE BUT IN THE MEAN TIME IT DOESN'T HELP THE DIARRHEA OR THE ABDOMINAL PAIN
CROGN'S COMMENT
by: SHELLEY

THANKS FOR THE INFORMATION.THE GI DOCTOR HAS ORDERED A BLOOD TEST SO WE'LL SEE BUT IN THE MEAN TIME IT DOESN'T HELP THE DIARRHEA OR THE ABDOMINAL PAIN
KEEP HASSLING THEM
by: Anonymous

HI
WHEN I WAS FIRST DIAGNOSED,I HAD A BARRIUM MEAL x-ray which involved having to drink some evil liquid then they havea look.these days they do a colonoscapy i think which is not as bad as it sounds,the last one i had they put me to sleep and it was over before i knew it,when i had my first one i actually watched the precedure on a tv which was weird and good at same time as they explained everything to me,Sounds like you need to see another docter to get to bottom{no pun intended}of things.keep hasssling everyone you can a its your body and you deserve to know whats happening.GOOD LUCK
JODI
crohn's disease
by: Mia

You can ask your doctor to do a blood test they have now to see if you have crohn's or UC. My regular medical doctor did it and told me that I have crohn's but after going to a GI doctor and getting a colonscopy he didn't see any sign's of crohn's and then did the blood test (not sure if it was the same as my medical doctor did) and he said the blood test said I didn't have it. He ran one more test, a upper GI series and small bowel series and unfortunatally they saw a thickining in my small bowel (where the small bowel and large bowel meets). He still doesn't seemed to concerned but I have been suffering with diareah for about 2 years now ( sorry for that information). It's pretty much everyday and i don't know what to do. The only medication he has me on right now is Asacol but it's not working.

Sorry for the long story but you can ask your doctor about the blood test.

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