scoliosis spondilitus arthritus melononma of the bowel partial sight and underactive thyroid and loss of signals to my arms NEW by: interesing
Yes i have a birth defect on my bowel, i have a key for the toilets but i dont have a gotta go card, , its terrible i was born with my scoliosis but i feel ive been tret awafull because am allergic to metal so they couldnt metal me up, anfd i have a hieutus hernia too, am on the lowest rate of care and mobility but i think i shud be on more, i am not well i have a rterocole and melonma
full time carers allowance fraudNEW by: Anonymous
a work colleage has given up her job to help her 27 year old single daughter (who suffers from crohns ) look after her two small children . she apparently, has been awarded full time carers allowance . I no for a fact that the daughter is able to get about do most things and can care for her two children and also has occational nights out drinking alchoal . could anyone tell me whether this sounds right . it just seems so easy to claim when I hear others in worse situation struggle to claim .
DLANEW by: Emma
I have had chrons/colitis for 10 years now i have had almost the whole of the last year off work. However i applied for DLA and was refused and even appealed the decision and that was rejected to i am disgusted that these people do not recognise this awful debilitating illness. Can anyone help
claim DLANEW by: Anonymous
I made a claim for disability i have been off work since May 2011 with lumbar scoliosis and severe depression also I may have arthritis.I appealed and had a medical at home which i was not happy with as the comments in the report was Not true i have again asked them to look at it again which I have not heard anything I have to move to a Bungalow or have a walkin shower and a stair lift fitted.My Occupational Therapist was shocked that i wasnt awarded it, and i am still waiting to hear I feel like many that i have been unfairly Treated.
dla for my son by: Anonymous
i applied for dla for my 12 year old son who has very severe ocd and autism,agrophobia among other things.he no longer attends school and i am his full time carer and we live on the very minimum income as i had to leave my job to take careof him because he does'nt touch anything at all.i have applied for dla 3 time for him and two time i have been refused.i am currently in the appeal stage and i have been told that my case wont even get seen until september 2012.this is really bad service from the government.
crohns by: lee
i have severe crohns that at most cases stops me from moving and breathing i cant wear clothes that take to long to get off because of really bad need for the toilet 90% of stools are diarrhea blood and blood clots the intense abdominal pain follows a really bad smelling fart but relieves the pain for a short while ive had steroids but they no longer work crohns is hard sapping and depressing Ive wanted to give up and give in to the disease many time the pain is really not nice but im getting used to it or less bothered just want rid of this life long nasty feeling well my best to everyone that suffers as i do xx
intence crohns by: lee
i have severe crohns that at most cases stops me from moving and breathing i cant wear clothes that take to long to get off because of really bad need for the toilet 90% of stools are diarrhea blood and blood clots the intense abdominal pain follows a really bad smelling fart but relieves the pain for a short while ive had steroids but they no longer work crohns is hard sapping and depressing ive wanted to give up and give in to the disease many time the pain is really not nice but im getting used to it or less bothered just want rid of this life long crappy feeling well my best to everyone that suffers as i do xx
different claim by: Anonymous
i had a doctor out to see me he says i was fit
to work from - ATOS- arthritis all over. scoliosis of the spine. left knee had op on that. run over by a car same knee more damage got turn down for dla went to appeal awarded h mobility low rate personal care indefinitly. there were 4 people at the board 3 says yes one says no but when i called DLA they said the want to no why they changed there mind? can they take it back of me i had been waiting for a year for the appeal or will the put me through another board. sent all the letters from my gp and surgion
ps keep fighting all the best for all
emma by: Anonymous
Hi Emma, Please, please go through with the tribunal. I have a son, who like yourself has crohns and has 8 weekly infliximab infusions. I have claimed dla for him and I know that most people who apply with crohns get automatically refused. After getting refused, I re appealed which was also turned down and then it went to tribunal and was successful. You must not give up, the appeal was not at all intimadating and seems to be the only way to get the help you need.Have you tried contacting NACC? they will get a DLA adviser to call you and give you advice.Crohns is a horrible disease and I really hope you get the help you need.
Re DLA with Crohnes by: Emma
I made a claime last feb for Dla at the moment is going to tribunal as I got turned down, I am constantly at the hospital receiving treatment every 8 weeks as I have infliximab and constant visists to the nurse that and some days extremly tired so cant always function, but because I can wash and dress my self I am not eligble
Re DLA with Crohnes by: Emma
I made a claime last feb for Dla at the moment is going to tribunal as I got turned down, I am constantly at the hospital receiving treatment every 8 weeks as I have infliximab and constant visists to the nurse that and some days extremly tired so cant always function, but because I can wash and dress my self I am not eligble
kasia by: Anonymous
hi I take merkaptopurine very help me.me english ist not good.
DLA by: Anonymous
Get a letter from your consultant to confirm you have crohns,and remember two of the key points is that you cannot stand for long periods of time and you cannot make a meal for yourself because of frequent visits to the toilet and having to switch off the appliances in the interests of safety.
Hope this helps,
P.S. If you know anyone in the medical profession who would help filling in the forms.
Appeals ...... by: Robert Mead
I had my claim for the high level mobility allowance turned down the day I had total knee replacement surgery on my left knee, the DHS sent a letter explaining their doctor claimed I was fir for work ! Anyway, took almost a year to have my appeal heard and I had high mobility allowance back dated to my original claim date which was nice but that didn't take into account the daily public transport expenses as I could not walk anywhere !! They never explained how the day I have surgery they can pass me fit to work !
DLA by: BARBIE ( ENGLAND)
I WAS TURNED DOWN AT FIRST BUT IT WENT TO A TRIBUNAL AND I DIDNT EVEN HAVE TO ATTEND IN THE END THEY JUST PHONED ME AND SAID WOULD I ACCEPT THE LOW RATE OF CARE AND LOW RATE OF MOBILITY, IF SO I WOULD NOT HAVE TO ATTEND.
I ACCEPTED AND HAVE BEEN AWARDED FOR 3 YEARS WHEN I WILL BE ASSESSED AGAIN.
SO DO NOT GIVE UP KEEP TRYING
d.l.a by: Anonymous
Me to. did not get dla at the tribunal service for my appeal thay say i was not entitled to either component at any rate on my decison notice
DLA by: Caroline
This site guides you through the dla forms and process
The National Association for Colitis and Crohn’s Disease (NACC)
4 Beaumont House, Sutton Road, St Albans, Herts, AL1 5HH.
Information Line: 01727-844296. Administration Line: 01727-830038.
Fax: 01727-862550. Website: www.nacc.org.uk. Email: nacc@nacc.org.uk.
This organisation offers:
· Information (via literature, meetings, and a telephone information line)
· Support (through local Groups, NACC-in-Contact, and a Disability
Benefits Project)
· A ‘Can’t Wait’ Card – recognised by some major retailers – enables
quicker access to toilets
How do you get Disability Living Allowance? by: Julie
What exactly is Disability Living Allowance and how do you go about getting it? I have recently been diagnosed with Crohn's and now that I have pre-existing conditions, I am unable to add other types of coverage to my insurance.
Disablility Living Allowance by: JoAnne
I live in USA and I was turned down for what we call Social Security Disability and I appealed in 2005. I got attorney an I will have my hearing in April of this year 2008. My attorney said there is no way they will turn me down for benifits. You can not work, so fight and do give up. My doctors told me they always turn you down the first time and if you can't afford attorney appeal again, and then again up to three time then they will give it to you. I know that is a long time but, what do you have but time. You can't work with this crazy disease. Good Luck
disability allowance by: Anonymous
Yes my sister has been on it for 10 years with her chrons and she is now 36. She lives in Brighton. She also has a blue disabled badge so she can park and dash to the loo if she needs to.
disability not likely by: shell
I also tried for disability at one stage the office told me that the disease is new and unknown and i would not qualify. This sucks who are they to say no for these reasons.
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