Is Immune 26 a scam to help for crohn's???

by Mia
(new york)

I read a post by a guy named Dave yesturday telling his whole story about Crohn's and after taking Immune 26 he is back to a normal life. I actually asked him if this was a gimmick because I am desperate for help. He replied back and told me it wasn't. I googled it and found that he put another post up yesturday on another site and they took it down and when he asked why they said "Dave, Promoting a product on the forums is not allowed. See the forum rules at www.healingwell.com/community/guidelines.aspx".

He then replied with the EXACT story that he wrote here in our forum:

Thanks, understand now. Its a wonderful supplement for Crohn's, in my opinion and from using it 8yrs now. I'll just post my story.


I was diagnosed with Crohn’s in 1995. My colon was lined with ulcers and when it would flare up, there were times, my doctor would say, the inflammation was so severe my colon would be nearly blocked. My symptoms were typical of anyone with Crohn’s:
unimaginable weight loss (as low as 112 lbs and I am 5’10”), severe abdominal pain, rectal bleeding, diarrhea (when I had a bowel movement, which was infrequent), difficulty sleeping because of the pain, general feeling of being tired (all the time!), ulcers in the mouth, and fistulas.
Because of the inflammation, my body was not able to absorb the nutrients from the little food I was able to digest.
Then the unthinkable but inevitable happened. Because of the inflammation, my colon ruptured in November 1996 and I was rushed to the hospital. The doctor confirmed the diagnosis: my colon had ruptured and the infection was spreading rapidly throughout my body. There was no choice but to have emergency surgery and hopefully catch the infection before it spread.

I vividly remember lying in that hospital bed, in the emergency room, not knowing what my future held or if I even had a future. For a brief moment, I contemplated not having the surgery even though the doctor gave me no choice. Have the surgery or in a week or two be put six feet under. Then I thought of my two precious daughters. What would they do without a father? I had NO choice!

The surgery that followed changed my life for years, even though the colostomy was only supposed to be temporary. The doctor resectioned the colon, connecting it to my stomach wall so I had to excrete into a bag.

Now, not only did I have to deal with all the aforementioned symptoms of the Crohn’s, but also had the unduling task of dealing with “this bag” hanging from the outside of my stomach. Physically I was drained from the battle with Crohn’s and now, as I would soon find out, the mental battle would soon begin. When you have a medical condition like Crohn’s, as well as others, its one thing to be strong enough to fight the physical symptoms but you also have to be strong mentally to fight changes in your appearance. Going from 140 or 145 lbs. to as low as 112 and looking like, as my Mother says now, a POW, takes a mental toughness that I never realized I had. The battle was just beginning!

Many years passed, with little or no improvement and it was not easy coming to terms that I had to live with this illness the rest of my life. My medical doctor kept telling me the only relief from the disease was medication (or drugs). His answer, when the Crohn’s would have a severe flare up, was to put me on steroids. Sure, the Crohn’s would go into remission and I would feel good for the short time of being on them. I would gain some weight back but also look like the Pillsbury dough boy. Why only be on steroids for a short time frame? Because, as is typical with any drug, there are severe, life changing, sometimes life threatening side effects.

My life basically consisted of going to work (if I had the energy), coming home and lying on the couch or in bed, eating very little dinner, visiting the bathroom frequently, taking medication that provided very little if any relief and going to bed. Trying to sleep through the night was impossible. I would wake up frequently because of the abdominal pain, attempt to go to the bathroom and either not be able to or have diarrhea. My sleep was very interrupted and unpleasant...day after day, week after week, month after month. Basically, I had no life!

I had come to the realization that I would have to live with the pain, the weight loss, the not sleeping, all the other side effects of the Crohn’s. And of having to live with the agonizing and irritating colostomy bag the doctors had told me was only temporary. While waiting to see my doctor for an apptmt, I was talking to a gentleman about my condition and he mentioned taking I26 and how it changed his quality of life. I'd tried many supplements before but told him I'd check it out.

This time I was pleasantly surprised. After the research I started using .... in April 2001, and have been on it since then. The results have been nothing short of phenomenal. I am without abdominal pain, sleep through the night, have a great appetite with steady weight gain (now weighing a healthy 170 lbs.), energy level is high, have resumed exercising again (which I had not done in years), and got back to my favorite game of golf.

But the extremely good news is the change in my medical condition. In past years my doctor had recommended against surgery to reconnect my colon because of the amount of active Crohn’s Disease present in the colon. After four months of being on Immune 26 I had surgery to reconnect my colon, and my surgeon advised me there is a 95% chance there will not be a recurrence of the disease.
Why was the surgery performed at that time? Because the last time the doctor scoped my colon in June 2001, he found very little active Crohn’s Disease. All previous years to that, he would never recommend the surgery because the disease was so active.
I am convinced that now my immune system is balanced and responding better then ever, better able to fight off the ravages of this disease.

Timeline:

• Mid 1995, diagnosed with Crohn’s.
• Nov. 1996, colon ruptured and emergency surgery with resulting colostomy bag.
• Apr. 2001, started immune 26. This is the ONLY change in my diet.
• Jun. 2001, doctor scoped colon, found very little active Crohn’s. Previous to this he would not even think about reconnecting.
• Sep. 2001, colon reconnected, NO MORE BAG!!! (after five (5) years of suffering)
• Dec. 2003, a healthy 170 lbs (on a 5’10” frame) and life is good!
• June 2009, 175lbs and feeling very healthy. Blood work normal.


Post Edited By Moderator (MMMNAVY) : 6/18/2009 7:53:00 PM (GMT-6)

I AM SO UPSET BECAUSE I REALLY NEED TO GET BETTER AND I DON'T KNOW WHO TO BELIEVE. IS HE JUST TRYING TO GET THIS PRODUCT SOLD OR CAN IT REALLY HELP? HAS ANYONE ELSE TAKEN THIS STUFF AND DID YOU NOTICE ANYTHING DIFFERENT?

Comments for Is Immune 26 a scam to help for crohn's???

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Hyperimmune Egg for Digestive Support
by: Dr Hellen Greenblatt

Dr. Shafran:

I hold a number of non-royalty bearing patents in the area of hyperimmune egg for gastrointestinal support. You are correct that this ingredient makes a major difference in quality of life.

Would enjoy talking to you (and any others that wish to discuss this).

My direct number is: 302.265.3870.

Thank you.
Not a scam it really WORKS
by: Anonymous

We have clearly demonstrated safety and efficacy of HY 26 in IBD and IBS
Pharmacoeconomic study show major savings using thus product to restore gastrointestinal integrity.
Dr Shafran
Tired of caring
by: John Russo

I posted before on how I26 worked in my case. I've researched the product and the field of hyperimmunity for many months. The original website was packed with real testimonials that shocked me yet made me do some research. I don't blame anyone for being a skeptic. I know there are bad people who will sell you a placebo as a miracle cure. This is not the case and guess what, you can buy direct from a company called longevity by yourself OK so no one is selling it to you. HAppy? No middle man to call names. all on you.
The product has decades of research and the field has far more and is worldwide. This is not some local farmer selling eggs but over 50 million dollars investment in this product R&D and years of trials and customers results. Understand it begins it work in the gut where 70 to 80% of our immune activity takes place with digestion.
I you have a disorder of the digestive tract and want to look for natural way that works with immune system then try it 2 x a day for at least 30 days. That's the most you can do for yourself.
Seems we have a skeptic here working hard to tear down the product and and people and make others fear it. Thank Lydia.
I have dealt with many like Lydia and many who are ill and could have benefited from use if I26 but their own ignorance and skepticism kept them in their present state. After years of trying to help many and they refused to be helped i decided it is best to not help any of you. I use I26 and have reaped it's rewards of better health and curing a nasty disorder of osteo arthritis.

I now refuse to help anyone or suggest I26. I'm disgusted with people in general and a few years ago decided it was not worth my time and effort to help people in any way. I've walked away from many. I dislike seeing others suffer and wanted to help many but I'm not on this planet to fight with skeptics and non believers. You have to handle this yourselves. I had to adopt the attitude that as long as I'm okay that's all that should matter.
little to lose
by: douglas nusbaum

The first thing that I did was to look at the CV of those involved with legacy for life. They were GOLD. So it is not likely that they would risk their reputations on a scam.

2nd --- What have you got to lose? If you take double doses, it will cost you, at most three or 4 hundred dollars over a course of 4 months. Not much in the scheme of things.

3. It got rid of my asthma, and I no longer get colds, visit here for my full story.

4. The company is under new ownership. I am a bit worried given what I have learned about his reputation. But so far, the product appears to be un changed.

You may wish to check this out on your own. I am still taking it
Had Asthma not it's gone
by: Kimberley Baerman

I was diagnosed with Asthma, I started on Immune 26 and one morning I awoke and found that I didn't use my inhaler that night. Since then I've seemed to not have asthma anymore. I exercise and breath heavy and it's just not around! I stopped Immune 26 because of the cost. But now I'm back on it.
i26 protein supports gastrointestinal health and quality of life.
by: Dr. Hellen

Full disclosure: I am NOT a medical professional, licensed nutritionist, etc. I hold however non-royalty-bearing patents in the area of this protein. I was responsible for pre-clinical and clinical trials (many unpublished) that support the fact that i26 can help the body support digestive health.

I am unaware of any use of the protein by the Mayo Clinic. [If anyone has evidence to the contrary, I would much appreciate it.]

The only published study that I am aware of in humans and gatrointestinal health can be found in PubMed if you use keywords like "Morningstar Hyperimmune
Egg".

In the past i26 was listed in PDR.

I am a strong advocate of a comment from Dr. Andrew Weil, namely:

"If a therapy is not harmful, why not experiment with it? Why not try it? Especially if conventional medicine doesn’t have anything great to offer.

The greater the potential a treatment has to cause harm, the stricter the standards of evidence it should be held to [in terms of] efficacy."

If it's non-invasive, has been on the market for more than 20 years, has pre-clinical and clinical studies,and you are at your wit's end, why not gradually introduce the ingredient into your diet?

God given... Egg Powder... IT IS NOT a SCAM!!!!!!
by: Anonymous

Why do people feel it necessary to put down something that is GOD GIVEN and can hel you with your health..... If you want my story I would be happy to share if you want to email me personally... I am 60 year old Long Haul Truck driving grandmother of 6 and Immune 26 had helped me for many many years and other family with severe health issues.... If you research for yourself you will know all doctors know about this... The Mayo Clinic uses it on their patients and its in the PDRG in every doctors office but will not tell you cause it's NOT a DRUG.... It is a life saver. Maria (wildfyr1955@yahoo.ca
I26 not a scam
by: John Russo

Over 12 years ago I had been diagnosed with osteo arthritis. I've also had psoriasis most of my life which I am positive was the result of a virus and strep infection. My concern was the arthritis in my right shoulder;there was pain and limited range of motion. the medical report suggested rotator cuff replacement. Drugs were all I had for pain.

I spent months educating myself on the immune system and arthritis to understand what was going on in my body. Someone told me about I26 but then I was looking at many products and ideas. Turns out I26 made sense. A few months of research into the use of antibodies convinced me this would help.

It needed to be used 3 times a day for at least 3 months to get things going but the results were amazing. Psoriasis went into remission in 30 days. New x-rays showed there was healing in the damaged areas in my shoulder. My doctor stood beside me looking at the same x-rays in disbelief but admitted it was healing.

The story ends with total healing within the year and continued use of I26 keeping psoriasis in remission. The benefits of an improved balanced immune system are beyond belief. The original company web site had many testimonials and success stories for just about every imaginable disorder.

recently I read some testimonials from people who used this for Crohn's disease and had success. Understand no natural product can be labeled as a cure or will heal you. I26 gives your immune system what it needs to heal your body. You can search for reasons not to use it, look for negative comments and listen to unsupported opinions but for the thousands of people who use it we know it works.

I was a skeptic like others but did my own research and found the right answers. You have an option, stay sick and in pain, chance getting part of your intestinal tract removed or try I26. They give you a money back guarantee in 90 days if you say it isn't working. When is the last time you got that guarantee from a doctor or pharmacy?
Is Immune 26 a scam to help for crohn's???
by: Lydia D.

I don't know how you reached and what qualifies you to reach an "uncomfortable" diagnosis for me. I shall assume it is some sort of diversionary tactic. Let's first establish the fact that I am not uncomfortable.

I am, however, astounded that a medical scientist consistently confuses IBD with IBS, blogs on IBS as if it were IBD, and then presents themselves as an expert for a dried egg product that has an acknowledged by the expert no "cure" value for IBD patients.

You supplied me with IBD articles when I requested your references to support your blog statment: that "For years I have been questioning “experts”, how is it that IBS is categorized as an autoimmune disease, yet you claim there is no inflammatory response in the gut?" as you wrote on 15th January 2012. These references have still not been supplied.

Rest assured that I have read all your responses very carefully.

I am pleased to hear that you agree that the hyperimmune egg product, so clearly endorsed by yourself, does not represent a cure for IBD. Now we are singing from the same hymn sheet.

Your suggestion that the product can increase quality of life is interesting, but also not founded on any clinical science for IBD patients. There are a couple of testimonials on the product from virtual Crohn's patients in the internet. There have been no clinical trials on this product because it is a food supplement and not a medicine and, thus, will not cure any disease. However, eggs will help towards curing Kwashiorkor and other dietary deficiencies.

I stand by my suggestion that patients increase their dietary protein (obtained from a number of sources including a couple of eggs per week). That is instead of paying dearly for dried egg. The cellular factors in which, which may or may not increase quality of life over and above a normal non-hyperimmune egg. Those who have money are at liberty to spend it how they wish.

An entry for I26 Hyperimmune Egg in the Physicians' Desk Reference (PDR) is unlikely to hold much weight because the company likely wrote the entry themselves and paid for its publication. The entry for I26 in the PDR
can be found here: http://www.i26forhealth.com/proven.php

Here is the drugs.com entry for the product: http://www.drugs.com/drp/immune26-powder-and-capsules.html

The fact that there is patent protection on a proprietary product is the norm. Nobody should be astounded at this. There is no such thing as a global patent. Thus, one need only have one idea, patent it in the country of origin and then patent it in another 195 countries and, hay presto, one has 196 patents filed for the product.
IT WOULD BE HELPFUL IF YOU READ RESPONSES
by: HCG

Since it it impossible to bold or highlight, I have tried to respond with capitals.

HCG-I AM SORRY YOU ARE SO UNCOMFORTABLE.

Lydia: I respectfully requested references indicating that IBS is an autoimmune disease as stated in a previous post of yours. I gather that this statement was untrue as you cannot furnish me with the references.

HCG- I DID RESPOND TO YOU ALMOST IMMEDIATELY ON JANUARY 16, 2012, HERE THEY ARE AGAIN.

HTTP://WWW.NCBI.NLM.NIH.GOV/PUBMED/22202115
HTTP://WWW.HINDAWI.COM/JOURNALS/CDI/2004/839572/ABS/
HTTP://WWW.NCBI.NLM.NIH.GOV/PMC/ARTICLES/PMC2486322/
HTTP://GRANTS.NIH.GOV/GRANTS/GUIDE/RFA-FILES/RFA-DK-95-005.HTML

HCG-PLEASE GIVE ME THE COURTESY OF -READING MY POSTS. I NEVER SAID THAT HYPERIMMUNE EGG CAN TREAT, OR CURE DISEASE. I SUGGESTED IT CAN HELP CHANGE THE QUALITY OF LIFE OF INDIVIDUALS.

Lydia -I refer you to the following sentence at http://www.hyperimmuneegg.org/

"Interestingly, the total antibody content of eggs from hyperimmunized hens as measured by ELISA is essentially identical to the total amount of antibody found in conventional table eggs."

HCG- THE AMOUNT OF IMMUNOGLOBULIN IN TABLE EGGS IS THE SAME AS THESE EGGS; IT IS THE CELLULAR FACTORS THAT MAY MAKE THE DIFFERENCE.

THE INGREDIENT WAS LISTED IN THE 2011 PHYSICIAN’S DESK REFERENCES, AT THE WEBSITE YOU CITE THERE ARE ABSTRACTS, PUBLISHED WORKS, PRE-CLINICAL AND CLINICAL INFORMATION AND PATENTS. IF THE FACTS DO NOT MATTER TO YOU, THEN I STILL WISH YOU THE BEST.

IF YOU WISH TO CONTINUE THIS CONVERSATION THEN GIVE ME A CALL DIRECTLY. CORDIALLY. HCG
You have your facts confused.
by: Lydia D.

For someone who does not know the difference between IBS and IBD it is a bit ripe saying to me that I have my facts confused.

I respectfully requested references indicating that IBS is an autoimmune disease as stated in a previous post of yours. I gather that this statement was untrue as you cannot furnish me with the references.

The polyvalent hyperimmune egg, i.e. dried egg, has already been shot down as potentially being a cure for anything by the FDA and this resulted in a law suit in 2003. This was inter alia because there is not enough clinical evidence in any indication to back up any sort of cure or healing claims.

I refer you to the following sentence at http://www.hyperimmuneegg.org/

"Interestingly, the total antibody content of eggs from hyperimmunized hens as measured by ELISA is essentially identical to the total amount of antibody found in conventional table eggs."

By means of translation: after injecting hens with bits of pathogens, microbes, etc., and then collecting their eggs and making the dried egg extract to sell to people at a price for whatever reason (reason unknown), the imunoglobulin content is more or less the same as an egg from an untreated hen.

So basically an egg is an egg.

I am not going to buy dried eggs from chickens that have been hypervaccinated with all sorts of things, the specifics of which are not revealed to me, when I can buy fresh organic eggs at an nth of the price. There is no cure for Crohn's. It is a multifactorial disease with hundreds of susceptibility genetic loci with over 70 of these identified to date.
http://www.nature.com/ng/journal/v42/n12/full/ng.717.html
http://www.nature.com/nature/journal/v474/n7351/full/nature10209.html

I would also like to point out that you are on very dodgy ground claiming that the dried egg product will help my body heal itself in any way.

From your previous post:

"What is sad to me is how vehemently you are opposed to seeing if your body can heal itself."

Your sentence implies that if I buy the egg product I will be potentially healed of Crohn's. This is breaking the FDA rules for the marketing of a food product or supplement. There is no evidence from clinical trials that this food supplement heals any disease. This is because food products don't need to be put through clinical trials because they are not medicines and are, thus, not going to cure anything.
Does it matter?
by: HCG

Certainly, if you are talking CLINICAL (i.e., medical) guidelines it may make a difference.

I hope you were kind enough to review my blog posting (below). Since inflammation is involved in both sorts of diseases, perhaps you would agree that if a person were in immune homeostasis, inflammatory balance, they would be more comfortable.

would be delighted to talk to you directly about this issue.

Cordially yours.



Does it matter what you call it?
by: Anonymous

If you are calling IBD IBS, then it really does matter. They are two very distinct set of illnesses with their own clinical guidelines.

You are missing a great deal of information if you think that IBD and IBS are the one and the same thing.

IBD is inflammatory bowel disease and refers to Crohn's, ulcerative colitis, collagenous colitis, etc. WGO IBD Clinical Guideline http://www.ncbi.nlm.nih.gov/pubmed/19653289

IBS is irritable bowel syndrome and has nothing to do with IBD. (See previous post for clinical guideline.)
Does it matter what you call it?
by: HCG

As you requested here are some references that suggest that IBD may be autoimmune in nature.
Personally, if I, G-d forbid were suffering from this sort of condition, I would not care what they called it. All I would want is for it to go away.

http://www.ncbi.nlm.nih.gov/pubmed/22202115
http://www.hindawi.com/journals/cdi/2004/839572/abs/
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2486322/
http://grants.nih.gov/grants/guide/rfa-files/rfa-dk-95-005.html

You have your facts confused
by: HCG

The company that currently manufactures and distributes polyvalent hyperimmune egg was not involved in any way with the litigation against Drs. Coleman and Kaminski.

The suit occurred because Marilyn Coleman, PhD, President of OvImmune, Inc and Mitchell Kaminski, MD continually made false and misleading drug claims about a product from powered egg yolks. She made statements that her product could cure cancer and other diseases.

They were infringing upon the technology covered by the patents held by the legitimate company.

Drs. Coleman and Kaminski chose to ignore multiple notices by the FDA of their violations and refused to do the scientific work to substantiate their claims.

The FDA acted appropriately against these two individuals. The legitimate technology and company have still been in existence since the suits.

What is sad to me is how vehemently you are opposed to seeing if your body can heal itself.

As Dr. Andrew Weil has said, The greater the potential a treatment has to cause harm, the stricter the standards of evidence it should be held to [in terms of] efficacy. …If a therapy is not harmful, why not experiment with it? Why not try it? Especially if conventional medicine doesn’t have anything great to offer.

http://DrHellenGreenblatt.info
Is Immune 26 a scam to help for crohn's???
by: Lydia D.

New researched answer: yes it is more of a scam than not.

The manufacturers and sellers of hyperimmune eggs have an FDA conviction for false marketing and making medical related promises. Two convicted for making, selling "magic bullet" egg powder: Richwood woman, Illinois man committed food and drug violations http://onibasu.com/archives/am/88482.html

What we are seeing is a revival of the product, but relying on patient testimonials. In addition to them hoping that nobody finds the 2003 conviction report. This has happened for other products such as colloidal silver, etc.

Testimonials can, of course, be false written on behalf of a company. We see enough of this practice on Amazon for various products.

The virtual Crohn's patient that reported on the positive effects of the IVIG on his colon actually rested the inflamed part of his colon for 5 years - no food was going through it - it was all diverted into the colostomy bag. If he had increased the protein in his diet without taking the IVIG, he might have experienced the same positive effects. We will never know this because we can't include the necessary control in this "one-man clinical trial".

I read the abstract on "IVIG having anti-inflammatory effects via incompletely understood mechanisms" (http://www.ncbi.nlm.nih.gov/pubmed/21917526). I did state in my previous post that selective Ig deficiency can be tested for and addressed with the appropriate medical therapy and may be an issue in some Crohn's patients, but is not an issue in most Crohn's patients. Its prevalence is approx. 1 in 500 of the general population. http://www.greatplainslaboratory.com/home/eng/immunedeficiencies.asp http://en.wikipedia.org/wiki/Primary_immunodeficiency Thus, it is clear that the occasional Crohn's patient will also have selective immunoglobulin deficiency.

However, nobody has shown that the food product makes a difference with IBD (inflammatory bowel disease - primarily Crohn's disease and ulcerative colitis). There is also the major problem with malabsorption in IBD patients in a flare, which means that a lot of the dietary nutrients pass straight through the body. Even the off-label use of intravenous Immunoglobulins does not include Crohn's disease http://en.wikipedia.org/wiki/Intravenous_immunoglobulin

If I was shown positive clinical data with respect to the specific treatment of Crohn's disease involving a few thousand patients then I would be open to the product.

However, it is likely that good nutrition including a few eggs a week (natural source of IgG) would be cheaper and most likely just as effective.
IBS
by: Lydia D.

IBD is a lot different from IBS (irritable bowel syndrome). Naturally, with any illness there are always quality of life issues. In the IBD patient the QoL is generally multi-fold lower than the in the "true" IBS patient.

In my opinion, I feel that "IBS" is the new age "psychosomatic" diagnosis. In former times patients with symptoms, which the doctors were unable to assign an immediate diagnosis were told that their symptoms were psychosomatic.

The Coeliac fraternity is of the opinion that many IBS patients are undiagnosed coeliac patients. http://www.allergy-clinic.co.uk/food-allergy/coeliac-disease/ A certain percentage are IBD patients - many Crohn's patients report first having to live with an IBS diagnosis.

In the last decade or so the scientific papers report that there is inflammation associated with IBS. However, I reiterate that I suspect that the majority of patients with an IBS diagnosis have other undiagnosed disorders and the IBS diagnosis is just convenient. The average IBS patient is not tested for coeliac disease, lactose intolerance (~25% of the population), or fructose (~33% of the population), maltose, sucrose, intolerances, or other food or additive allergies. There is no reporting on the number of IBS patients that "progress" on to other (auto)immune illnesses such as Crohn's and coeliac disease.

I would also argue that if one is going to drink litres of sweet, acidic, gassy drinks, then one is bound to get bloated and have have intestinal pain with eventual inflammation. I would look to see people remove artificial food additives (colourants, flavour enhancers, etc.), sweets, sugar, sodas, colas and alcohol from their diets and then report back on their guts in a year's time. The truth is that our Western diet is somewhat lacking. Vitamin deficiencies can cause gut pain and may eventually lead to inflammation. http://ods.od.nih.gov/factsheets/list-VitaminsMinerals When I was on business in the USA I was surprised to see adults drinking cola cola with their breakfasts in a top notch hotel.

I must admit that it is new to me that IBS is categorized as an autoimmune disease. I read nothing in either the USA or UK IBS clinical guidelines that indicates this. http://www.guideline.gov/content.aspx?id=13703 http://www.medscape.org/viewarticle/556356 The emphasis is rather on psychotherapy and regular and good nutrition.

Would you be so kind to provide me with the relevant references? Many thanks.
Inflammation is the key.
by: HCG

Hi Lydia:
I am not a clinician, but a scientist with a special interest in inflammation. IVIG has anti-inflammatory effects via incompletely understood mechanisms (http://www.ncbi.nlm.nih.gov/pubmed/21917526).

Although the antibodies may make a contribution, the smaller cellular factors, or other immunological factors, are likely to be the reason that these treatments may make a difference.

Also, we should never forget the side effects and concerns that come from combining blood products from tens of thousands of people, not to mention the expense.

Many physicians categorize Crohn's differently from IBS. However, many of the quality of life issues are similar.

Below is a blog that I posted a number of months ago on http://DrHellenGreenblatt.info. Perhaps you would concur with some of the comments.
......................
A recent guest post on kevinmd.com by Sophie Lee expressed her frustration and anger at physicians who dismiss her reports of pain with her severe bouts of irritable bowel syndrome (IBS). She repeatedly hears, “it isn’t really serious” “you will just have to live with it, etc.

I just do not get why conventional “wisdom” is that IBS is not an inflammatory disorder. Perhaps pain is possible without inflammation, but that would be atypical. My contention is that if the immune system was in homeostasis, autoimmune disease would either not occur, or it would be limited.

For years I have been questioning “experts”, how is it that IBS is categorized as an autoimmune disease, yet you claim there is no inflammatory response in the gut?

Current research supports my contention. Recent studies are providing evidence that low levels of inflammation, along with immune mast and other immune cells, are found in the small and large intestines. Mast cells are typically associated with allergic reactions such as runny noses, watery eyes, swelling, and excessive mucous. The mast cells in the intestines appear to be involved in immune homeostasis, in helping the immune system balance.

Interestingly, many of the immune cells found in the gut are in close proximity to nerve cells. .. “Cross-talk” between these cells may explain the pain and other symptoms that individuals experience, and support the hypothesis of a brain-gut axis event in IBS.

It is time for individuals that have “tried everything”, to give their bodies a chance to heal naturally. The immune system has caused the problem, and the immune system can be gently guided to down-regulate overly active responses.

The key to greater comfort may be as simple as helping the body return to immune homeostasis. I hold a patent in the area of immune homeostasis and gut health, and numerous anecdotal reports suggest that balancing immune inflammatory responses makes a major difference in the quality of life of such individuals.

One has everything to gain by letting one’s own body rebalance and limit inflammatory responses.

Inflammation is the key.
by: HCG

Hi Lydia:
I am not a clinician, but a scientist with a special interest in inflammation. IVIG has anti-inflammatory effects via incompletely understood mechanisms (http://www.ncbi.nlm.nih.gov/pubmed/21917526).

Although the antibodies may make a contribution, the smaller cellular factors, or other immunological factors, are likely to be the reason that these treatments may make a difference.

Also, we should never forget the side effects and concerns that come from combining blood products from tens of thousands of people, not to mention the expense.

Many physicians categorize Crohn's differently from IBS. However, many of the quality of life issues are similar.

Below is a blog that I posted a number of months ago on http://DrHellenGreenblatt.info. Perhaps you would concur with some of the comments.
......................
A recent guest post on kevinmd.com by Sophie Lee expressed her frustration and anger at physicians who dismiss her reports of pain with her severe bouts of irritable bowel syndrome (IBS). She repeatedly hears, “it isn’t really serious” “you will just have to live with it, etc.

I just do not get why conventional “wisdom” is that IBS is not an inflammatory disorder. Perhaps pain is possible without inflammation, but that would be atypical. My contention is that if the immune system was in homeostasis, autoimmune disease would either not occur, or it would be limited.

For years I have been questioning “experts”, how is it that IBS is categorized as an autoimmune disease, yet you claim there is no inflammatory response in the gut?

Current research supports my contention. Recent studies are providing evidence that low levels of inflammation, along with immune mast and other immune cells, are found in the small and large intestines. Mast cells are typically associated with allergic reactions such as runny noses, watery eyes, swelling, and excessive mucous. The mast cells in the intestines appear to be involved in immune homeostasis, in helping the immune system balance.

Interestingly, many of the immune cells found in the gut are in close proximity to nerve cells. .. “Cross-talk” between these cells may explain the pain and other symptoms that individuals experience, and support the hypothesis of a brain-gut axis event in IBS.

It is time for individuals that have “tried everything”, to give their bodies a chance to heal naturally. The immune system has caused the problem, and the immune system can be gently guided to down-regulate overly active responses.

The key to greater comfort may be as simple as helping the body return to immune homeostasis. I hold a patent in the area of immune homeostasis and gut health, and numerous anecdotal reports suggest that balancing immune inflammatory responses makes a major difference in the quality of life of such individuals.

One has everything to gain by letting one’s own body rebalance and limit inflammatory responses.

Is Immune 26 a scam to help for crohn's???
by: Lydia D.


A friend of mine with Crohn's also has selective immunoglobulin (aka antibody) deficiency. She receives monthly immunoglobulin therapy in hospital. http://medical-dictionary.thefreedictionary.com/Immunoglobulin+Deficiency+Syndromes

A certain percentage of patients with (auto)immune disease may potentially have some form of selective immunoglobulin deficiency. It is not routinely tested for. http://www.webmd.com/a-to-z-guides/immunoglobulins

If you think that you could have selective immunoglobulin deficiency (very infection prone, etc.) it would make more sense to have the blood test done and to receive the appropriate medical treatment from your doctor.

Anyone who is malnourished may have abnormalities in their immunoglobulins. The answer here would be to address the malabsorption or malnourishment.

I recommend that everyone discusses all potential new therapies with their doctors prior to commencing something that might interfere with their current therapy.

The only mention of hyperimmunized eggs and Crohn's appears to come from the single virtual Crohn's patient as reported by the thread poster here.

A search for "hyperimmunized egg and Crohn's" at: PubMed http://www.ncbi.nlm.nih.gov/pubmed/
http://www.medscape.com
http://www.webmd.com
clinicaltrial.gov
centrewatch.com
revealed no relevant Crohn's papers.

So there do not appear to have been any clinical trials carried out with this product and Crohn's disease.

If, as an IBD patient, you increase the protein in your diet, in the form of eggs, chicken, tofu, fish, which are easier to digest than other protein sources, you will probably find that you benefit enormously from it. Eggs are a particularly good source of fats, protein, vitamins and minerals - ask any baby chicken. http://en.wikipedia.org/wiki/Egg_%28food%29
Hyperimmune Egg (aka i26)
by: HCG

The greater the potential a treatment has to cause harm, the stricter the standards of evidence it should be held to [in terms of] efficacy. …If a therapy is not harmful, why not experiment with it? Why not try it? Especially if conventional medicine doesn’t have anything great to offer.

“The greater the potential for harm, the more evidence needed.”

Dr. Andrew Weil

Immune26 is pure egg protein, listed in the 2011 Physician's Desk Reference, has pre-clinical and clinical published trials, 100 patents and patent submissions, and patients that report considerable changes in their quality of life.

What do you lose by trying it (especially with a 90day guarantee of product costs)?

Abstracts at: http://HyperimmuneEgg.org

I am considered by many to be the authority on hyperimmune egg. If you want to talk, I can be reached at DrHellen@DrHellenGreenblatt.info .

I wish you the best.
Is Immune 26 a scam to help for crohn's???
by: Lydia D.

Well, babies take up antibodies from their mums through breast milk, so oral antibodies could have some effect. But, what are the antibodies against? Bear in mind that we have up to 1000 different types of microorganisms in our guts. http://en.wikipedia.org/wiki/Gut_flora

I think that you may throw your money away. I wouldn't try it personally. However, it just depends on your finances and your spirit of adventure. Certainly there is no cure for Crohn's http://www.hyperimmuneegg.org/

In the long run, you would be better off rethinking your diet. It would be wise to eliminate the following from your diet: all pure sugar sources including honey and sodas/colas, artificial food additives, sorbitol and artificial sweeteners, fatty fast foods, microwave meals, take away meals, etc.

If you have severe diarrhoea then you should discuss with your doctor supplementing the following on a daily basis:

- high dose vitamin B-complex (yeast tablets)
- magnesium
- calcium and vitamin D
- selenium with vitamins A, C, and E
- iron and vitamin C (liver, fresh orange juice)
- potassium (LoSalt http://www.losalt.com/index.php, bananas)
- zinc
- fish oil (oily fish)

Vitamin and mineral deficiencies are a big problem in IBD. I believe that many of the symptoms of the disease, e.g. joint pains, malaise, and tiredness, may be somewhat lessened by adequate micronutrient intake.

http://ods.od.nih.gov/factsheets/list-VitaminsMinerals
I don't have Crohns but have used I26 for 12 years
by: Karen

I am reading the stories of people suffering with this disease and my heart pours out for them. No crohns in my family, but here is my story in a nutshell:
In 1997, my 2 year old daughter was diagnosed with chronic eczema...it covered her body in large red circles. Doctor visit after doctor visit, topical ointments, even sun treatments at a local hospital. We were desperate! Finally the dermatologist said,it's her immune system. It's just the way she reacts to the environment.
Well, we researched to find something that would help heal her from the inside out...13 years later, her eczema is all but disappeared except for a couple of dime sized spots in Jan-March under her arms.
Bonus: I started to take the product first before giving it to my child...my severe August-October allergies decreased significantly and still remain under control to this day.
i26
by: Anonymous

Take a look at the technical website: http://www.HyperimmuneEgg.org . The company says that there is a 90day you-try-it guarantee for product costs (and no need to return empty containers, etc.) Call the company if you need to talk to a technical person--they seem to be pleasant and will pass you onto someone very knowledgeable.
i26
by: WH/ SoCal

I tried this stuff, and found results! The only to find out is try it yourself! If you are looking for something to help what do you have to loose? For me it worked! Arthritis, is what I have that I mostly noticed! Great product! There are probably, other products to take along with i26, I think that would even possibly create a bionic result. It works, and thats all I have to say about that!
IMMUNOCAL
by: MJ

Hi,

I have to say that my husband was diagnosed with Crohns 20 years ago. He is also taking Immunocal. It is really an amazing product. It's a shame it's not well known. It's not a cure, but it really has improved his quality of life. It worked so good I decided to become a distributor.

Immunocal helps your liver make Glutathione a master antioxident. Research Glutathione. There are over 80,000 medical articles written on it. It boggels my mind that more don't know about it.

I wish you the best!

Distributor@immunocalwellness.com
20% of retail price.
Hyperimmune Egg
by: Anonymous

Hyperimmune egg (branded as i26) has peer-reviewed and unpublished studies suggesting that it enables the body to support immune homeostasis and gastrointestinal health. It appears to deliver bioactive cellular factors that help balance immune inflammation. Details and patents can be found at: HyperimmuneEgg.org.
Immunocal
by: Marie

Hi to Everyone! I have to tell you Immunocal works!!
I have seen the benefits of Immunocal change the lives of several of my friends, including myself. The interesting thing about Immunocal is it treated many different conditions as they state it will do. I personally suffered from Spinal
Meningitis, it almost killed me to be exact. I never truly recovered to the person I was before. I would just collapse from being so tired to the point that I would have to park somewhere when driving to sleep or I would literally fall asleep at the wheel. The napping was a daily thing , but unpredictable ;so I really couldnt create a schedule around them.I had no energy what's so ever. I had been suffering with this condition for years with little improvement. I started taking Immunocal and that's when things started to change . I did suffer some headaches when taking the product, however I stuck to it. It's the detoxing & healing process . I feel great.!!!!! I along with my friends got our immunocal from
immunotec.com/whatsimmunocal
I hope this helps.
Marie
Facts about I26 Hyperimmune Egg
by: Anonymous

Before you discount I26 Hyperimmune Egg here are some facts to consider
-The product was created by Con Agra and Dupont
-The product holds 123 patents
-The product holds a GRAS file of Safety from the FDA
-The product has been tested and proven by US Military, Harvard etc.
-Information about pre clinical and clinical trials can be found at hyperimmuneegg.org

It unfortunate that some of you discount any new product or findings if they are not an RX or if the person recommending the product also sells the product.
-the company offers a 90 day unconditional guarantee, what else do you want. At some point you are going to have to decide whether you want to seek help or just keep doing the same ol thing
Scam products
by: Kirsty

It is unfortunate that these scams do happen. Especially when there are people out there who do have genuine stuff to sell that can help.
I, for example, am an Assistant Supervisor for a company called Forever Living, and I sell pure Aloe Vera.

We sell a drink called Aloe Berry Nectar which is proven to help calm and even eliminate the symptoms of IBS, Crohn's Disease and Cystitis.

The one thing you need to look for in people that post on forums is a Distributor ID number. If they don't have one of those, chances are it is a scam. If they do have a D.ID then you need to ask for a phone number or an address where you can check it out.

My web address is www.shopwithkirsty.co.uk, my email address is kirstyoldfield@hotmail.co.uk if you have any questions and my D.ID number is 440100386679.

If anyone is interested in trying out my products and wants to check out I am a licenced Distributor, email me and I will email you the phone number so you can check it out. Also if anyone wants more information on the products I stock, email and I will get the information emailed to you within 24 hours.

We also offer a 60 day money back guarantee so if you try anything and you don't like it, you can send it back, no matter how much of the product you have used. That is how much faith we have in these products.

Don't hesitate to contact me if you would like anymore information.

Thank you

Kirsty Oldfield
Assistant Supervisor
Forever Living Products.
I26
by: Anonymous

I also did research on I26 and found the same article you did with the doctor saying it's nothing but an omlett in a pill and basically it's a scam. I haven't heard of the other you mentioned but I will try and do some research about it. If you find anything please let me know.
i26 and Dave's story
by: Rachele

I have all of Dave's Books and yes he is a real person with the disease and yes what he says worked for him....while it may or may not work for you he is just offering advice on what helped him. Not all treatments for crohn's work for everyone. Each person is different just as each immune system reacts differently to each medication and each infection or disease. Remicade worked for me and didn't work for other's now after 2 years of Remicade it is no longer working so if I26 worked for Dave it may not work for anyone else. Just my thoughts.
who knows
by: phil

hi, i havent heard of i26 before but will be having a look at it shortly, i also had the same quandery about a natural drug called primal defense, basically a super probiotic with some other natural stuff in there, i read a very similar story to daves and was sceptical but i decided to give it a go anyway,after using it for 3 months i can honestly say it has made a positive difference although not to the extent id hoped but it helps nonetheless, unfortunately it seems its very hard to get a doctors opinion on any drug that isnt in the mainstream-ie isnt supplied by the government and huge profits made on it, my opinion is that dave is trying to sell a product but it may work, im willing to give anything a try, as long as it doesnt cost the earth whats the harm, it will help or it wont.
crohns
by: lucy

hi Mia, i like to know more staff about this product, can you help me
crohns
by: lucy

hi Mia, i like to know more staff about this product, can you help me
I26 and Chron's
by: Anonymous

HI Mia : I also read Dave's story and was almost convinced that it is the right stuff for me. I went through a severe flare up 6 months ago and was willing to do anything to get rid off my pain. After accurately and acutely researching the information Dave emailed , I sensed some middleman action there where he tried to play a neutral salesperson who is seemingly referring someone out of good faith to try something he is obviously promoting. I also found some articles online that carried a long rebuttal between a distributor and a Doctor who was trashing I26 . The Doctor simply called it an expensive omelet. After finding such info , I felt the same way you felt. I don't know who to believe any more. I have two friends of mine who told me to try something called immunical. I have not tried it yet and I am still in the process of researching it . I even requested help from this forum and asked if anybody has heard about it or tried it. But nobody has replied yet. So if you find anything let me know.

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