Meds for crohns

by Dee
(Waterport, NY)

I have been on pentasa 2 caps 4 times per day and endocort (2 times per day for 1 month and 1 time per day for the last 3 months). For the first couple of months on this regimen I was feeling pretty good. Now I am back to some pain, nauseous alot and d--- at least every other day. Or I am constipated, but have the urgency thing going. Has anyone ever been on a regimen like this and has had the same reaction? Or is it just Me? I am like alot of people that I have read about. Frustrated with this disease. Either I am kicking someone out of the bathroom or I get really really close to accidents. It Sucks!!! I try for the most part to have a positive outlook, but I am also tired or listless alot. Any answers to these thoughts? It would be muchly appreciated! Thanks for listening.

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pentasa didn't do it for me
by: Anonymous

Hello,
I'm not familiar with endocort, but I was on pentasa (4 caps 4 times per day) for a few months and it didn't do anything for me. Still had bad d--- and pain. I finally went on 6mp, which has been much better for me, and kept me most of the time in remission, for the last 4-5 years. Might be something to look into... Good luck!
Meds for crohns
by: Anonymous

I was in the exact same situation as you up until a few days ago. The entocort seemed to work for me at first, but not anymore... all of my symptoms came back and worsened (symptoms like yours). I was also taking Imuran (Azathioprine), but only started it 4 weeks ago, and it can take up to 12 weeks to see any results, so that hasn't started its effect yet. My doctor has now switched my entocort to prednisone, so that my symptoms will hopefully be reduced in the time while waiting for the Imuran to kick in. I don't know if it is working yet because it has only been 2 days, but I am hoping, and hoping not to see too many side effects from the prednisone, but most people do I think. If I don't respond to the Imuran, then I will be switched to Remicade or Humira. I will let you know if all of this works, in about 4-6 weeks, but definitely go see your doctor so that he/she can make some changes to your meds. It is frusterating, but you just have to find what will work for you, and the only way to do that is to tell your doctor what you are experiencing. Good Luck.

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